Stop Tumors

Sky's Video

Lorem Ipsum

Meet Sky, the typical NF2 little hero.

Read More read more

Counting Cars Video

Lorem Ipsum

See a clip from the History Channel's Counting Cars and their show featuring a car to be auctioned off for NF2 Research

Donate

Lorem ipsum dolor

The Schiffman family covers all the admin and overhead, 100% of your donations will go directly to promising cutting edge.

Donate

Buy the Car!

Welcome to the only place you can bid on and buy the car of your dreams. A Counts Kustoms exlusive creation!

Buy Now

About Us

We are your typical family. 3 boys, 1 girl, 3 dogs, a few fish and a couple of turtles. I still recall that fateful day July 14, 2014, when Sky was diagnosed with NF2. We were playing dress up in the playroom, and I saw her stumble a bit, I chalked it up to excitement. As the day went on I noticed her leg shaking when she was standing. I asked her if she was feeling sick, or if she was in pain, she smiled and said, “no mommy, now it’s your turn to catch me”. As I laid in bed that night, I could not stop wondering why her leg was shaking. I told my husband about it, and like every other parent, we started searching the web for answers. The next morning, Sky had a doctor’s appointment for a basic check-up, I told the Doctor what I noticed, and he conducted a CT scan….that’s when he said those mournful words, “your daughter has neurofibromatosis type 2”


NF2

Neurofibromatosis type 2 (NF2) is a hereditary condition most commonly associated with bilateral vestibular schwannomas, also known as acoustic neuromas. These are benign (noncancerous) tumors that occur on the nerves for balance leading to the inner ear. Although these tumors are benign, they can cause hearing and balance problems.
People with NF2 also have an increased risk of other tumors of the nervous system. These tumors are generally not cancerous, but they may still lead to significant medical problems, especially if there are multiple tumors in or next to the brain.

Lastest from the Blog

Lorem ipsum dolor sit amet

admin

Pellentesque habitant morbi tristique senectus et netus et malesuada fames ac turpis egestas. Vestibulum tortor quam, feugiat vitae, ultricies eget, tempor sit amet, ante. Donec

Detail

Follow us on Twitter